The accident, that rendered Emily quadriplegic, changed our lives forever but her paralysis hasn’t had an impact on her fun personality, drive and ambition or life goals. When catastrophe occurs we commonly seek to return to our normal. Striving for normality implies that only normalcy delivers a good life which isn’t the case. Being differently-abled in society is normal which leads me to consider what is normal ?
Is it reasonable for a 28 year old to want to drive a car; to be independent? Yes, no debate necessary yet Emily was denied NDIS funding for car modifications allowing her to drive independently. Why? My question is – NDIS What’s reasonable ?
Emily and I attended Graeme Murphy’s Swan Lake at the Capitol Theater, Sydney. I never saw the tickets as Emily booked our outing so I arrived into my seat expecting to see the traditional interpretation. I was instantly aware of the design change and delightfully intrigued as the dancers told this new version of a classic. It made me think… Continue reading →
I have to publish this post before I forget how we have managed with Emily’s cast. The operation to address tenodesis was on December 9th with the original bulky white cast being replaced by a lightweight purple cast the following week. We were on the bus into town minutes after the vividly coloured, ‘punching fist’ cast had dried, well, it was the week before Christmas and a girl has to shop!
Emily had surgery this week. A complex rearrangement of muscles and tendons in her right arm that will allow her to lift her wrist upward and to position her thumb for an effective pinch and some grip. Continue reading →
I was in Barcelona recently at the Picasso museum, impressed by this revolutionary artist. He experimented with ideas and design, colour and shapes. He altered our perception of objects and our interpretation of faces and bodies. He had the original thought that comes to geniuses.He reinvented art and it’s form.
Our SCIA Walk On therapist asked me to read and review – Eat Well, Live Well with Spinal Cord Injury and other Neurological Conditions written by Joanne Smith and Kylie James. The book is dedicated to Cooper Pulini who attends Walk-On next to Emily.
A recent study showed that a diet rich in turmeric aided spinal cord health. In a bid to do the right thing I have upped the turmeric in Emily’s tea, coffee and all things consumed! I jest for those that don’t know me, we only put milk in our English breakfast tea.