As I watched the Hollywood blockbuster Suffragettes I realized the importance of writing. I may meekly advocate for change with a keyboard but my cause is worthy – equality for the differently-abled with recognition and support for their carers.
Emily and I chose an unknown path recently …….
I don’t know any celebrities but if I had the opportunity I’d hang out with Chris Bath. Chris facilitated the plenary discussion at the CarersNSW Conference where I was invited as a carer representative. A natural gem, who better than Chris to aid the panelists deliver their stories and ideas to an audience of professionals, service providers and the extended care community.
“There’s no place like home” repeats Dorothy in The Wizard of Oz, tapping her little sparkly red shoes . Here I am in Oz and I’m so aware that home is where I want to be. When it’s raining on a cold Sunday afternoon home is where the hearth is warm and the kettle boils ready for tea. When your feet ache from shopping all day home beckons with the opportunity to rest up on a long sofa. After a wonderful evening with friends my bed invites me to languish cozily under the covers but it’s important to get out.
We are all homing pigeons, each of us stack up memories that revolve around our homes and families. We can be ourselves in the privacy of our own homes. Our kitchens reflect our tastes, our decor reflects our personalities and our lifestyle is reflected in all our interior choices. Homes are unique, intimate and wholly our own space. We can hide from the world, we can rejuvenate, we can rest and recuperate, we can prepare ourselves and gird ourselves for our next challenge.
The Strength 2 Strength program for carers is specifically designed for family members of people with spinal cord injury:
Another day dawns and another days news. I have noticed a repetitive thread within local and national reports – if the subject includes key words such as disability, spinal cord injury (SCI) or wheelchairs – the common issue highlighted is lack of access. As many media reports focus on this aspect of life regarding disability, the general public might think that this is all people with disabilities have to say and that saddens me as there is so much good stuff! Continue reading
It’s approaching Emily’s third anniversary as a wheelchair user. Life doesn’t suddenly become easier we just subtly manage our situation with more knowledge, acceptance and realism as time passes.
I have to publish this post before I forget how we have managed with Emily’s cast. The operation to address tenodesis was on December 9th with the original bulky white cast being replaced by a lightweight purple cast the following week. We were on the bus into town minutes after the vividly coloured, ‘punching fist’ cast had dried, well, it was the week before Christmas and a girl has to shop!
Emily had surgery this week. A complex rearrangement of muscles and tendons in her right arm that will allow her to lift her wrist upward and to position her thumb for an effective pinch and some grip. Continue reading
I had time to read this week about how to cope in a crisis. One helpful book quoted insight-fully that focusing on the traumatic cause of disabling injury can prolong mental suffering. Focusing on what I can do to improve the situation keeps me moving forward towards an adapted future. Preoccupation with the genesis of a disability can be at the cost of my own post trauma reformation, growth and development. It is better to concentrate on the healing process, recovery, rehabilitation and facilitate new aspirations and goals. Continue reading